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Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community. Select a category to see all the blogs available in that category.
This is a new periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, Read More…
With Mother’s Day approaching, NAF would like to recognize all the amazing moms in the Ataxia community. Whether you are a mother navigating her own Read More…
Taking part in research is one way to help accelerate the development of treatments for ataxia. Some people like playing an active role in improving Read More…
Each year on the final night of the Annual Ataxia Conference we honor members of the Ataxia community for truly standing out in the field Read More…
NAF to Award $735,000 in Ataxia research grants in 2023 There was a robust pool of applicants for NAF research grants in 2023. It demonstrates Read More…
Mike De Rosa, a 23-year Green Beret Special Forces Veteran, is set to hike Mount Kilimanjaro in October to raise awareness for Ataxia. Mike, a North Read More…
The FDA recently the FDA announced approval for SKYCLARYS (omaveloxolone) for the treatment of Friedreich’s Ataxia. This is the first and only FDA-approved prescription medicine for Friedreich’s Read More…
The Coordination of Rare Diseases at Sanford (CoRDS) coordinates the advancement of research into 7,000 rare diseases via data sharing and study recruitment. CoRDS works Read More…
We’re excited to announce our partnership with Day Undefined! Our members can look forward to exclusive new resources created for the Ataxia community. Day Undefined, Read More…
Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives.
We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Living and Dying with Spinocerebellar Ataxia Type 7: A Carer’s Read More…
http://youtu.be/sYccDzT25eY?si=f6GkonkY4FvsyFHy The video above is from Maitreyi’s personal YouTube channel, Read More…
Thank you for your interest in contributing content to our website!
We do accept guest submissions for our blog; however, we have a few important guidelines. All content must be original (not published elsewhere online) and relevant to the Ataxia community. Submissions should aim to inform, support, or empower those affected by Ataxia, including patients, caregivers, researchers, and advocates.
Here is an example of a guest authored blog: https://www.ataxia.org/6-tips-to-improve-mental-health-while-living-with-ataxia/
If you have an idea you’d like to propose, please feel free to share a brief summary or outline for our team to review. We appreciate your interest in supporting our mission and community! Email us at naf@ataxia.org.
We appreciate your interest in supporting our mission and community!
We offer the following benefits to guest writers on our blog:
The following are editorial standards for blogs posted on our website:
